Links
Chiari Organizations
- American Syringomyelia Alliance Project
- New Foundation/website still in the initial phase
- World Arnold Chiari Malformation Association
- Set up by Chip Vierow in MN who is one of the moderators of the message board – has one of the more active message boards, but tends to be very lopsided in patient representation
Chiari patient assistance websites
- Wishes and Rainbows - provides various forms of financial support to qualifying patients and their families
- Angel of Flight America - provides air transportation to medical facilities for qualifying patients
- Hindbrain
- Rate MDs
Chiari patient websites
- Chip from WACMA's website
- Eurico from Canada's website – his daughter has Chiari 0
- A site dedicated to Chiari 0/"borderline" patients
- 6-year old patient of Dr. Frim's who is selling beaded bracelets to raise money for research
- When she became too ill to keep up with the large number of orders she was getting due to publicity, a few of us made bracelets to help her out - she is something else!
Chiari merchandise websites
- Proceeds benefit ASAP
- Proceeds benefit ASAP
- Wishes & Rainbows – Various items for sale with proceeds going to Wishes & Rainbows causes
- Neuromart – Home of the "got brains" items...and everything brain you can imagine
- iGive – This site lists stores that donate a % of online sales to the charity of your choice - ASAP is a beneficiary